Monday, December 6, 2010


Fri, Nov 12, 2010

ABC Nightline story on clinical trial 10 month update after neurosurgery


This is the link to the Nightline story on ABC with Terry Moran about the clinical trial for Gene Therapy (NGF) at Georgetown University. This is the update 10 months after surgery.

When you watch the Nightline story, please click on the 'LIKE' button on the ABC page to show ABC your support and appreciation for them airing this story (they started working with us a year ago on the story). If you want to share this news story with others, PLEASE DO.

2 years ago, we had not a glimmer of hope in dealing with this devastating disease that was when we found the Georgetown Memory Disorders Clinical Trials and began the process of joining a clinical trial. Now we have some hope, and we want others that are dealing with this disease for themselves or a loved one to have some hope also. Hopelessness and helplessness are two very dark emotions/feelings that can rob you of so much whether you want to let them to or not. Even one spark of hope can re ignite our life and our light.

Without the love, prayers and support of so many, we would NOT be in this place today. Altazar (Rich) is the 2nd human being in the world to have this experimental surgical procedure of Gene Therapy inserted in to the brain to see IF and IF ANY, WHAT, impact it may have on Alzheimer's Disease.

We feel and know that it is the energy of Prayers and Support that put us in this place at this time. This clinical trial is our glimmer of hope!

NBC Washington is also airing a news story about this clinical trial towards the end of November that will air on NBC affiliates around the country as one of their Health segments.

Our next post-surgical follow up with a PET scan, MRI, and other testing will be in December for the 1 year follow up.

New research now shows that symptoms may begin appearing as much as 10 to 20 years earlier than they had originally thought. Also, there is now DNA/Gene testing they can do to see if you carry a gene to indicate the likelihood that you may develop Alzheimer's. The earlier you know, the earlier you can start intervention therapy and treatments. Altazar’s symptoms began in his early/mid 40's and he was FINALLY diagnosed at 52. This is a link to a Facebook group that we have setup to help share information and updates on Alzheimer's research and advances. If you are on Facebook, please join our group page.

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